Brigg Freemasons are proud to support the work of Emma-Jayne Ashley and her volunteers who raise funds for research into finding a cure for Congenital Myotonic Dystrophy as well as providing support for those affected by the condition. The £500 donation was presented at the Brigg Christmas Fair.
Congenital Myotonic Dystrophy is a genetic condition which presents itself in early childhood. It is a multi-systemic neuromuscular disorder, under the umbrella of ‘Muscular Dystrophy’.
Myotonic Dystrophy is hereditary, and if a child is born with CDM, one of the parents WILL have it. This is quite a daunting realisation, and if there is no prior knowledge if the disorder in the family, it can be a scary thing to come to terms with.
Further information about CDM and the Fight Fund can be found here: https://congenitalmyotonicdystrophy.org/index.html